Autonomic Dysfunction and Fatigue

EDS and Chronic Pain News & Info

Autonomic Dysfunction and Fatigue – Alan Pocinki MD – notes from a 2015 presentation

These are notes from a 2015 presentation given by Alan Pocinki, a well-known EDS specialist. The format is not pretty, but the information is discernable, so I’ve left it exactly as written.

Cardio Vascular Dysregulation

  • POTS- Postural Tachycardia Syndrome
  • OH- Orthostatic Hypotension
  • NMH- Neurally mediated hypotension (vaso-vagal syncope, neuro-cardiogenic syncope, delayed orthostatic hypotension)
  • OI- Orthostatic Intolerance

What We Know About Cardiovascular Dysregulation 

View original post 1,732 more words

Advertisements

Dear Dr. Robert Jeffress,

russell & pascal

Dear Russell & Friends,

I’ve cc:ed you on my open letter to Dr. Robert Jeffress, pastor of First Baptist Church Dallas, Texas.  For point of reference, I’m responding to his sermon here:

Dear Dr. Jeffress,

My name is Pascal and I am a follower of Christ.  I have done so since I was a child, trained by imperfect but godly parents who loved me and taught me to to love scripture.  I had not heard your name or seen your face before you chose to address the world in the guise of addressing your congregation.  My first impression was that you must be a Republican politician.  Red tie.  Dark suit.  Dour expression with forced smiles.  When I searched your name, most posts were from Fox News.  First impressions can be illuminating.  Malcolm Gladwell would call it a blink.  That was type 1 thinking – – a heuristic reflex that recoiled…

View original post 793 more words

Come as You Are?

P. Andrew Sandlin

SRS_Come-as-you-are

All of us have seen a church marquee. We have seen the amusing maxims. Years ago I saw one which read, “Prevent truth decay; burn a Living Bible.” Some are not amusing. They are pithy and true: “A Family Altar Can Alter A Family.”

One that I have seen increasingly is “Come as You Are,” or some variation of it. This is an example of a statement that is true, but one which leaves so much unsaid that it could easily create a false impression. It’s necessary, but not sufficient. It needs more. The statement is a welcoming statement. “You don’t need to change in order to come to this church. Please, come just as you are.” There is even a famous old gospel song titled, “Just As I Am.” This is precisely what Billy Graham entitled his autobiography. The message isn’t only that we should come to church…

View original post 1,609 more words

Jesus, Take the Wheel! – Lessons from the Book of Daniel

The Disciple Diaries

The chapter this week is quite long, but I encourage you to read it. As we look at the second chapter of Daniel this week, I want you to read this considering an impossible trial you may be facing. Are you facing redundancy, your house being repossessed, re-sitting a failed exam, lots of debt, health issues with no sign of a cure, or any other impossible situation? Think of that thing as we go through the next Life Lesson in Daniel.

Background to Daniel 2

So the King of Babylon had this crazy dream and wants to know what it means. So he calls on his “diviners, mediums, sorcerers and Chaldeans (Babylonian wise men)” to not only interpret the dream, but tell him what he dreamt. This was an impossible task: how can someone know what you’ve dreamt? Despite how unrealistic request, if they didn’t do it, they would die. Obviously, they couldn’t…

View original post 463 more words

Dysautonomia: the umbrella

Reflections Of A Bear

People often find it confusing when I use the words Dysautonomia and POTS interchangeably in a conversation. They’re like, “Hang on, which one is it that you have?” I know that a lot of newly diagnosed patients struggle with this too, so I thought I’d make an infographic to explain.

I’m a visual girl, so I’ll use any excuse to make a picture 😉
But I do hope it makes it a little less confusing for everyone.

Dysautonomia umbrella

‘Dysautonomia’ is the umbrella term for conditions where the autonomic nervous system (ANS) doesn’t work properly. There are lots of different kinds of dysautonomia. I personally have POTS, which you can see listed on the picture (along with the many other kinds of dysautonomia). For a more detailed (but still easy to understand) explanation of Dysautonomia, click here.

Feel free to share with your befuddled family and friends!

xx S.

*UPDATE*
1,000…

View original post 16 more words

12 Tips For Traveling with POTS

Chronically Ridiculous

Questions about travel pop up a lot and I can certainly understand why traveling with POTS is a battle. When flying you face problems such as security lines, standing to get off the plane, change in pressure, change in elevation, and a lot of walking. Driving doesn’t offer a wonderful alternative to flying. Often driving includes sitting in the same position, limited food, and drink options, or motion sickness. Often the combination of these factors leads to a lot of POTS patients avoiding travel. If you do decide to travel I offer up the things that have made traveling bearable for me:

1. Keep All Medications Near You
This applies to traveling by car, boat, plane, or by sled dog. Anytime you travel you should pack a bag that you are going to keep close to you. This bag should stay right below your feet so you are ready for…

View original post 1,520 more words